Baby Jack's Blog

2010-12-01T20:08:00.001-07:00

2009-09-21T13:06:00.003-06:00

2009-09-21T12:46:00.003-06:00

playing before surgery he has no clue whats about to happen sad

two days after surgery

before surgery

FUN

2009-07-03T16:06:00.005-06:00

Dancing and playing the drums!!

So stoked!!

Driving the boat in Lake Powell

GUPPY!

This is how we have to cut his hair

Jack loves to drive cars

SWIMMING!!

FUN

2009-07-02T19:33:00.003-06:00

Jacks first worm!

Jacks first black eye.

Wow about a year ago we were bringing Jack home and he still had the NG tube and was very sick. Look at him now! It's so crazy and so much fun to watch him grow. He has come so far. He's walking and has 6 teeth. He loves to give everyone kisses and a high five and he loves cars. He's so smart. I love watching him grow and learn new things he is so funny to watch. I'm so glad we have him here he's such a joy totally brightens your day everyday.

2009-06-02T23:22:00.001-06:00

2009-05-15T22:30:00.000-06:00

2009-05-15T16:37:00.000-06:00

Easter in Cabo!

2009-05-15T16:19:00.003-06:00

We spent Easter in Cabo! It was way fun. It was his first time flying and he slept the whole way there but on the way home was bad he cried and cried the first while until he fell asleep. Jack loved the pool. He loves outside. He didn't like to walk in the sand at the beach or swim in the ocean so no building sand castles just hanging in the sun.

HAPPY BIRTHDAY!!!

2009-04-01T12:46:00.000-06:00

HAPPY BIRTHDAY JACK!!!

2009-04-01T12:30:00.003-06:00

Yesterday March 31 was Jacks first birthday. It was so much fun! Everyone came over and partied. We had the whole shebang. Balloons decorations and three cakes and the birthday music. I don't think he knew what was going on but he looked like he enjoyed it.

2009-03-29T13:38:00.000-06:00

Life is GREAT!

2009-03-29T13:26:00.002-06:00

Things are so good. Jack has two teeth now. Hes all over the house exploring everything and trying to learn how to walk now. He loves books and the frog cookie jar. He knows where the candys at. He also loves pop if anyone has some he has to have a taste. Hes such a little trooper. He loves the out doors if hes crying and you take him out side he stops immediately. Jack loves his Papa. Hes always calling him and wanting him to take him outside and look at the cars and ride the little motor bike. Papa means play time.

2009-03-12T10:28:00.004-06:00

Jack is doing so good. He's crawling now in his own funny way. He's doing really good. Went to visit his primary nurses up at primary children's and they were so excited to see him and couldn't believe how far he's come. Jack is gonna be turning one march 31st I can't believe it. I never thought this day would come and he would be doing so well.

2009-01-10T11:32:00.001-07:00

He climed up like that all by himself!

2009-01-10T11:23:00.002-07:00

The last while has been really busy Jack has been sick with one thing after another. He got way sick Christmas eve and was sick for a whole week after that. We ended up taking him back to primary children's. He didn't like that one bit. I hope he didn't have any flash backs. jk. But hes doing way good now. Hes skipping the crawling and started trying really hard to walk.

2008-12-02T22:12:00.000-07:00

2008-12-02T21:58:00.002-07:00

Jack is doing so good! His 14lb and 1oz hes growing so fast. He eats totally and completely on his own all baby foods it's so nice. He is so much fun. I'm excited for all the Holidays coming up its gonna be a blast!

2008-10-31T13:02:00.000-06:00

2008-10-31T12:48:00.002-06:00

Jack is doing so good. Hes had his NG tube out for a while now and is eating from his bottle so well. Now hes starting to eat regular baby food too. Hes still a little behind and under weight but for the most part everything is great!

2008-10-13T23:12:00.002-06:00

Jack hasn't been doing so good the last few days. He's been really sick with Roseola and started to lose weight so the tube had to go back in. He didn't do very well in physical therapy either. So hopefully when he isn't sick we can try no tube again and work really hard on his therapy.

2008-10-05T21:17:00.003-06:00

We went and saw Jacks surgeon about getting him revised and it was all good news. Jack is doing so good and has come so far. His surgeon is so pleased and amazed with how well Jack is doing. The only thing that sucks is he isn't quit ready to be revised yet. Jack is still healing inside and his Doctor said to wait about a year because hes been through so much and his body and insides are not quite ready. Jack pulled out his NG tube a week ago today the little punk. He hates the tube just as much as I do. So I decided to leave the tube out and see if he can handle eating his whole meals on his own. So far hes doing ok not where he should be but really close. We go see the Doctor again in a few days to see if it really is ok to leave the tube out for good. All he has to do is gain a little bit of wait before we go in again and we will be in the clear. If not he might have to get a GI tube. yuck! But I really think Jack can do it on his own if I just keep pushing him.

2008-09-07T22:46:00.003-06:00

Jack is doing really good. I got him to eat 30ml by mouth the other day for one of his feeds. I hope that means hes gonna start eating all his feeds by mouth soon. He is growing way fast and the doctor and all his therapists say he's doing great too. We are looking into plastic surgery for Jack's tummy to try and make his scar look a little bit better and and give him a normal belly button. (Gunna you didn't leave any contact info. My email is shankaville@yahoo.com I would be more than happy to answer any of your questions.)

August 23

2008-08-23T17:21:00.004-06:00

2008-08-14T21:13:00.005-06:00

Jack is doing really good. He is getting so big so fast. He keeps me so busy all the time. He still can't eat on his own but we are doing a bunch of therapy with him. He's slowly starting to catch up to where he should be. He loves bath time. He is starting to roll over and sit up. We are way excited for his progress.

2008-07-12T22:20:00.003-06:00

JACK IS HOME!!!! Its been an adjustment for all of us. Hes just getting over a really bad rash and he is off one of his meds and has four more to go. He still needs to learn to eat on his own and is on a breathing moniter at night. We are having so much fun having him home and he is just full of smiles.

2008-06-30T20:09:00.005-06:00

Jack is doing so good they think he will get to come home in about a week. We have been learning how to take care of him on our own once he's home. We are just waiting for him to get off all his drugs. He doesn't have jaundice anymore. He's been eating better from a bottle, but he will be on a feeding tube for awhile at home. Everything went well with the ct scan; it's all normal and they did a hearing test today and that's all good too. He still throws up quite a bit and has a little bit of thrush left to get rid of. Other than that he is very happy. His new thing to do all the time is standing. We cant wait to bring him home.

2008-06-14T10:51:00.006-06:00

Jack is good. He still won't eat on his own. The jaundice is going away and the wound vac is still off so he can lay on his tummy for the first time only because he is hooked to monitors. He gets his ct scan on monday to make sure everything is ok there. He had a upper gi scan to see why he throws up so much, but it turns out he doesn't have really bad reflux or any blockages on the upper part so they have to look more into why he is throwing up. We are way excited for his progress. He's a good natured baby and the nurses love him.

2008-06-12T10:49:00.005-06:00

Jack is doing really good. They took off his wound Vac said they want him to close on his own and they are going to leave it off for a week and see how he does. His infection cleared up. He still has jaundice and reflux. The only thing holding him from coming home is him not eating on his own. They might give him a GI tube or teach us how to feed him through his nose.

2008-06-04T07:41:00.002-06:00

Jack has been sick the last few days. He has an infection in his wound it was leaking green stuff so they put him on antibiotics. Hes been throughing up alot the last few days too so they put him on some reflux meds. Hes wont eat on his own so they are still feeding him through a tube in his nose. Other than that he has been doing really good.

2008-05-26T10:43:00.002-06:00

2008-05-24T12:46:00.004-06:00

Jack is doing good. He has his good and bad days but for the most part it's all moving forward. He's trying to learn how to bottle feed. He's still breathing shallow because his lungs are crowded so he needs to grow a little bit taller. His infection is clearing up and they are hoping to stitch his skin closed in two weeks. Hopefully his skin has stretched enough for them to do that. We are hoping to have him home by July.

Pictures from Saturday, May 17

2008-05-22T19:59:00.002-06:00

May 9

2008-05-09T22:18:00.002-06:00

May 9 Continued

2008-05-09T22:12:00.003-06:00

Here are some pictures from today. Candy finally was able to hold him today!

May 9 Continued

2008-05-09T22:05:00.004-06:00

May 5

2008-05-05T21:31:00.003-06:00

Here is a video from today. Jack has been doing good this past week. The last few days they started trying to feed him. So far we haven't determined if his stomach and intestines will work. Since they haven't been used at all, they can take awhile before they start working. If they don't work, the doctors will have to determine if there is an obstruction and Jack will need more surgery's. The doctors are slowly coming down on his ventilator and they are hoping to have him off it within a week or so.

April 30

2008-04-30T22:07:00.004-06:00

Jack turned a month old on Monday! He has been doing really good the past few days. He has been losing weight little by little each day. The doctors today said we may be able to bring him home in 2 months! We are excited about his progress. We have posted some pictures from today and yesterday.

April 27

2008-04-27T19:24:00.003-06:00

Here are some pictures from today and yesterday. Jack had a tough day today. He had a chest tube put in to drain some of the fluid that was stuck in his chest. Jack is taking longer than expected to recover from the surgery a couple weeks ago. We are still waiting for his swelling to go down. Once the swelling goes down we hope to get him off his ventilator so we can hold him.

April 23

2008-04-24T00:04:00.005-06:00

Jack has been very sick since he was closed about 10 days ago. At this point we are waiting for his swelling to go down. He has been gaining weight ever since his surgery. At midnight tonight they weighed him and he finally lost 5 ounces! He is currently 8 pounds 2 ounces and his target weight is 6 pounds 2 ounces. We wish we could give you more on his status, but right now everything with Jack is going to take time and we are in a waiting game.

April 15 Todays Pics

2008-04-15T19:38:00.003-06:00

April 14 Surgery

2008-04-14T22:36:00.005-06:00

Today the surgeons attempted to get everything back in and close him up. They were able to get everything back in but his skin wouldn't stretch enough, so they left him open and we will wait for the skin to stretch and close him as soon as possible. The surgeon said Jack is doing better than he expected, but he said everything is going to take lots of time. He said that he will leave Jack alone for the next 2-3 weeks before looking into trying to feed him. He wants to see how everything reacts now that its inside. He still thinks Jack will be in the NICU at primary childrens for a few more months. We will keep posting pictures over the next few weeks, but things will be the same for awhile it sounds like. The first two pictures above were after Jacks surgery(They are keeping him completely drugged for the next 48-72 hours so he doesn't wiggle and harm himself). The other pictures were taken right before he went into surgery. He's definately a little PIMP!!!

April 9 Day 9

2008-04-09T23:01:00.005-06:00

Jack has been pretty sleepy the last few days. Anytime he starts to get fussy his nurse gives him more pain medicine. They don't want him to feel any pain. The surgeons plan on having everything put back inside by monday and he is scheduled to have surgery on monday to get his stomach sealed. Once he is sealed we have to see if his intestines will start working properly. The surgeons believe there is a blockage somewhere in them and they think that Jack will need several surgery's to fix everything. We hope they are wrong and once everything is inside we hope that everything will just start working the way it's supposed to. At this point we just have to wait and see how his intestines are doing once he gets sealed on monday. Then we will go from there.

Day 7 April 7

2008-04-07T21:24:00.012-06:00

Jack had a really good day today. He was had a large amount reduced(being reduced is when they put his intestines back in). He is way ahead of schedule and we are excited about the progress he has made. Originally they thought it would take 3-4 weeks to get everything back in, but today they said he might be done by this Thursday or Friday! Once everything is back in we have get everything working properly before he can come home. This usually takes a minimum of 1-2 months is what we've been told.

Day 6- April 5, 2008 Pictures

2008-04-06T19:22:00.002-06:00

Jack loves his binky!

Day 6- April 5, 2008

2008-04-06T16:45:00.000-06:00

Tonight Jack was really alert and looking around and moving his arms and legs a lot. He also was really loving his binky. He was actually holding his binky and it was so cute. He just seemed so good and healthy. We were really excited that he was doing so well. Also, the nurses had some music playing in his bed and he loved that. The doctors have worked on putting some of his intestines back in his abdomen twice and it seems to have gone as well as can be expected.

posted by Cathy

Day 3 April 2, 2008

2008-04-03T20:52:00.001-06:00

Day 2 April 1, 2008

2008-04-03T20:46:00.001-06:00

He has a lot of hair.

Baby Jack is here! March 31, 2008

2008-04-03T20:37:00.000-06:00

Baby Jack

Shawn with baby jack.

Candy at the hospital getting ready to have baby jack.